Rainbows and Unicorn (Poop)

“At times I have hated myself – my body and the ingenious way it has figured out how to die – then got over it.  But I’m not over it, and I don’t know how to get there.”

This will likely be a short post, and a tiny warning…it may sound more like a rant than anything else.  And you may be offended so let me just address that right now.  If you are offended at something I write (or something I do not write), get over it.  I am opinionated and passionate, and I am dying.  I have zero control over anything in my life and have realized that I really have never had control over anything, haha!  It was an illusion I created for myself.  And if I could do it over with my current knowledge – I would do everything differently.  Almost everything.

I have been reading about death and dying..bogs from other people that are going through something similar to me.  And so far what I have read has really just…well so far I am not impressed.  I am reading about how well they have accepted their fate and all of the love and fru-fru stuff.  I have read nothing about the pure anger and emotional pain.  It is not all unicorns and rainbows people!  In fact, I am angry and sad, and angry, and sad, then ok, then sad and so on and so forth.  In the past year not once have been “everything will be fine and things happen the way they happen and I just want to spend my time with my family”.  Not once.  Not yet.

Does this make me a terrible person?  I hope not.  But if it does then I guess that is my reality, in addition to dying.  I don’t WANT to die.  Who does??  I don’t WANT to sit here and worry about my three -year old daughter and how much this will hurt her, but I do.  I don’t WANT to figure out how to find comfort in providing comfort for my husband, and how this will destroy the dreams we had of growing old together.  I WANT to change it.  I WANT it to go away.  I WANT to have the power to do something about it and I WANT cancer to just go away for goodness sakes.  And I am not getting anything I want.  And I’m pissed.  And at times I have hated God, then got over it.  At times I have hated my doctors, then got over it.  At times I have hated myself – my body and the ingenious way it has figured out how to die – then got over it.  But I’m not over it, and I don’t know how to get there.

A counselor, maybe?  Doubtful.  At the risk of sounding arrogant, I have been in healthcare for 30 years (since I was 16-years old), I know what is happening and what is going to happen to my body.  And I know there is nothing I can do about it.  And I know that being angry is just a waste of my precious damn time.  And I know that regardless of what I feel this is going to happen no matter how bad I am against the whole idea of being a terminally ill patient.  Talking about these intimate things to a stranger with more letters behind their name than I have will doubtfully make a huge difference in how I view the facts.  BUT, one never knows.  Maybe I better start looking for one.

I am likely angry because I am scared.  Most emotions – or at least the negative ones – are sparked by fear.  I could go on and on about this and continue the rant…but I am certain it is all coming out wrong and that the impression I am giving is of a spoiled, self-centered, egotistical stingy brat who happens to have cancer.  That is not who I am.  But…how do I show you…how do I make some sort of damn difference in someone’s life – anyone’s life?  How do I hurry up and figure out what my legacy is so I can place it somewhere in the universe and leave my heart print?  Do I have one?

My heart is just plain broken.  I don’t know how to die.

 

Today…Unlike Any Other. Dammit.

“Suddenly, I realized I am not immortal, I am human, and that just plain sucks.”

What is the first thing you think of when you wake up in the morning?  Yeah, I don’t know either and would typically balk at anyone who asked.  But…today.  Well, today was different.  I woke up and felt…grateful, sad, angry…almost rebellious.

Wait.  Do you know?  Have I written about this before?  The answer is a resounding “No!”

When I started this website the intent was to put useful bits of information out there and show how they – whether we want them to or not – are incorporated into our everyday lives.  It was a positive “blog”; frankly, I really had no desire for it to be anything but a sounding board when I needed to show off or let off steam, and I certainly didn’t intend that anyone would be interested enough to actually read it. But now…I think not.  I think now, it is quite different.  Everything is different.  So.  You don’t know.  Bwa- ha- ha- ha- ha.  Well, let’s get you up to speed, eh?!

One year ago, (oddly) to the exact day, I was diagnosed with stage IV adenocarcinoma of the small bowel with Metz to the ovaries, uterus, and omentum.  I am forty-six years old with a three-year-old hanging around my neck most of the time and two grown children in their mid-twenties.  I was given 6-9 months to live with a 5% chance of making it three years.  That day was certainly one for the record books (for me anyway)!  Yesterday I was told the Metz had further invaded my sacred body and decided to settle down all nice and snug into my lungs.  New prognosis?  Three to six more months, maybe, and “get your shit together, Cindy.”  Today I woke up and suddenly, being conscious was a very difficult choice.  Suddenly my entire world looked and felt different.  Suddenly, I realized I am not immortal, I am human, and that just plain sucks.

So I did not do much, did not talk to anyone, did not go anywhere, cannot recall what I watched on television for hours and hours, cannot recall what I thought about – if anything at all – today just…did not exist.  I flipped the computer on this evening and felt guilty for not following through with this site (a big stressor for the triple type A personality I have taken 46-years to perfect), saw the word of the day, so to speak, and decided to write you a little note about the word “suddenly“.  Yesterday it meant one thing, today it has taken on an entirely different meaning, and I am waiting to wake up tomorrow and every day after that until all of this is not so…sudden.

Talk soon, I promise. – Cin

 

Always

I will always be with you, and you will always be with me. I love you, my dear.

I would do anything

and everything,

something;

So that you could

See, hear, taste, smell,

feel me.

Something wild.

Anything crazy.

Everything…

Real to touch, real to smell,

Real to see and real to taste.

Real to hear.

I would do everything, every day.

I will do everything…everything I will do for you to be with me

forever.

I will always be here,

Be with you, and you

will always be with me.

I love you, my dear.